A Word or Two on Surrendering; Story on Surrendering

There are times when dealing with our health concerns that surrendering comes into the picture and becomes a quality that would serve us well to cultivate. When we are waiting for our test results from the laboratory or wake up with a migraine on a day we planned to get a lot done, we learn to give up control and let go. We have learned from the past that pushing ourselves in this state only increases our pain and that worrying about the outcome of our test results only causes us more distress. Often, excruciating symptoms can bring us to our knees and give us no choice but to relinquish control and surrender.

The act of surrendering is a humbling one. We are reminded that something bigger than ourselves is holding the reins and that by recognizing this, we find a way to allow our life to unfold, instead of forcing our will onto it. Twelve-step programs have developed the slogan “Let go and let God” and turning it over to a higher power greater than oneself, when we end up getting too much in our own way to do us any good. For those uncomfortable with the word “God”, they can exchange it with the concept that we are not always completely in charge of our circumstances and may have to put into place a different way of handling our present challenges, than worry and agitation.

The act of surrendering doesn’t mean we roll over and give up and do nothing. It means we allow energy to move through us and not manipulate it, thereby allowing The Great Mystery to unfold and leaving room for spirit to come into our life. When we become open like this, our intuition can be tapped, new solutions can come to us or just the understanding that for now, maybe all we need to “do”, is rest or putter around in the garden that day or get some support from a friend.

Numerology Guidance Cards by Michelle Buchanan
Surrender

Surrendering control may be something we have to do over and over again, if we are particularly anxious; like waiting for those test results. Surrendering takes practice like any other spiritual discipline and we may need constant reminders. We may notice that the way we are going about finding an answer to resolve our health issue has become too obsessive, i.e., going from one practitioner to the next without taking time to reflect on why this might be happening in the first place. It may be better for us in this case, to slow down a little and recognize that underneath this behavior is fear, and we might be better off to explore that fear and see what that has to teach us, rather than go about our health care in a frantic, grasping way. When fear rises again and again, surrendering can become the anecdote that calms us down.

 

Story on Surrendering

When I was in my twenties, I lived communally on land, with a small group, during the 70’s. I loved living there at the time, but for various reasons, the community was breaking up and individuals were moving on. I was unhappy with this idea, but I had no choice but to move on, too. I realized I relied on the others to be there in case of a seizure, but who could I rely on now? On top of that, with the stress of the dissolvement of the group and the stimulation that came from living communally, I had had a few seizures and came to the conclusion that I couldn’t take care of myself. Appallingly, it seemed to me, my only option was to pack up all my things and go stay with my parents – the very people whose way of living I felt estranged from and who I felt lived the opposite to what we had been trying to create on land, where I had been living. Not only that, but I needed help packing and couldn’t fly on my own – my mother had to come and get me! For a young woman out in the world on her own, developing new ideologies with others that branched away from the norm (with a lot of judgement towards others, I might add), this was beyond humiliating!

Once at my parents’ house, it took months for me to fully recover. Not only did I have to put aside my youthful ideals, but I had to let go of the elemental independent way of living we all usually take for granted. Most of the time, I couldn’t prepare meals for myself; my mother did. I couldn’t drive, so I had to rely on my father to get anywhere. Some part of me knew I was fortunate; that I had loving parents who could take me in, but my false pride wouldn’t allow a full appreciation of this fact. I chafed against their ways that I perceived as outdated and steeped in sexism, but felt I had to keep my mouth closed, because I was reliant on them for my basic needs. At times, I resented this, making it easy to resent them.

Although I wasn’t very good at it, I was forced to surrender. I had to put aside my beliefs and my prized independence in order to get my needs taken care of. I felt ashamed and humiliated to be in this position, and because of this, couldn’t fully give in to the feeling of surrendering, which made everything that much harder.

More than twenty years later, things have changed a great deal. I am more apt to be honest with myself about my limitations and needs, although, there often seems a layer of resistance before I let go and accept my circumstances. I no longer carry around the arrogance I used to have in my twenties that made me feel I was somehow more evolved than others. Having had to, time and time again, ask for help over the years, has led me to replace humiliation with humility and a letting in of others in my life I may not have otherwise, which expands my spiritual path that much more. When we only let in those who have the same ideology and lifestyle as ours, we develop a narrow way of being and living. I believe I have a  more developed sense of gratitude in general, because of having to let others in, by way of caregiving for me. All this I’ve gotten from the gift and act of surrendering.

 

Citations:

Buchanan, M., Numerology Guidance Cards. https://www.michellebuchanan.co.nz/numerology-oracle-cards/

Hazelden Betty Ford Foundation. Letting go of our need for control frees us. https://www.hazelden.org/web/public/hff11022.page

 

 

 

 

Sleep Deprivation; Anxiety; “The Guest House”

Sleep deprivation creates a kind of hunger – the body can’t help but want what it needs. I think of those who are starving for food and I think there must be a similarity there; a craving that persists, no matter how much you long for it to be different. You can’t help it – you won’t feel satisfied until you get what the body needs, whether it be sleep or food or to be pain-free.

Anxiety is like that unwanted relative that shows up on holidays. She is your Aunt Sadie or Tio Julio or your cousin Tamala or your great uncle, Malif. They tell crass jokes in front of your children or talk too loud or too long or get a little more drunk than you’d like, or they don’t help out with the dishes, or they stay too long. Or, they have breath like aged cheese and spill wine on your favorite tablecloth, or eat too much and belch loudly, or complain constantly. But somehow, you know they should be there – they are a part of your family. You know they must have special gifts, but you can’t see them. You know they have something to teach you, but you can’t figure out what. On rare occasions you notice something in them that strikes you positively, which surprises you: they can sing sweetly, or they saved an animal’s life, or they once volunteered at a hospital. And so, when the next holiday comes around and they make an appearance once again, you welcome them, because after all, they are family, whether you like them or not, and there’s no changing that. Just as there is no changing that they will always rub you the wrong way.                                                                                                                                 Anxiety is like that.

The Guest House

This human being is a guest house

Every morning a new arrival.

A joy, a depression, a meanness,

some momentary awareness comes

as an unexpected visitor.

Welcome and entertain them all!

Even if they’re a crowd of sorrows,

who violently sweep your house

empty of its furniture,

still, treat each guest honorably.

He may be clearing you out

for some new delight.

The dark thought, the shame, the malice,

meet them at the door laughing,

and invite them in.

Be grateful for whoever comes,

because each has been sent

                     as a guide from beyond.  ~ Rumi

 

 

I Said I Would be Honest

I said I would be honest

So here it goes:

This is one of those days.

Those days I feel seizury,

which doesn’t mean I’ll have a grand mal seizure

but will feel like I can’t figure things out.

I will slur my words and feel blurry

and want to cry and feel like

I don’t belong in this world

and why am I here, really, why???

I am not suicidal, but I hope I don’t

live a long life so how’s that for honesty?

This blog helps me gives me purpose and

meaning and I just hope it helps

someone, even just one person.

Today is a “TV day” where I can’t

do much but watch reality shows and

shows that aren’t too complicated.

I have a caring caregiver here (better

than an uncaring one!) and so that

makes things better. I have a partner

that suffers too, who loves me and

has loved me for years and will love me

for years to come. There are three kitties

too: Reggie, Zoe and Simon, all of who

I adore, so I guess, why complain?

But today, right now, well I wish I

could feel better and think better and

SLEEP!!!

and I know when I bring my attention

to the present moment

Right here, right now

I am ok

this epilepsy, insomnia, anxiety

can bring me to my knees

again and again

so while I’m here

I might as well kiss the earth

and say “thank you”

which breaks my heart open

which teaches me how to love

which is why we are all here.

~Maluma

 

Cari

Cari Looking to the Right (2)

I walk into Cari’s room. The lights

are dim and the TV is on. When she looks

up at me from her recliner, I notice she is

squinting.

“Oh. Migraine”, I say, keeping my

words to a minimum.

She sighs. “Yup”.

“Again”.

“Yup”.

“I’m sorry. I’ll be quick. I want to let you know a caregiver won’t be coming today, after all”.

“Oh. Who was on”?

“Liza”, I say.

And then I quietly leave the room, closing

the door gently behind me.

As I return to the living room, I reflect on our relationship. Cari and I met through a mutual friend. I had heard she had epilepsy, too, and I really wanted to know how she managed.

I had a lot of compassionate friends, but I knew it would be different if I met someone who dealt with the same issues that I did. I wanted to know: how did she cope? Did she have seizures often? What kind? Did she take meds? Were they under control?

We eventually got together and shared information, and shortly thereafter, became friends. The friendship turned into attraction and we fell in love. A year later, we exchanged vows in a wedding ceremony in our front yard.

When I knew we were falling in love, when I knew this was a relationship I wanted to pursue, I realized at some point we would need help (I had learned in the first few months of knowing her that she had other health challenges, including debilitating migraines, chronic sinusitis, and what eventually culminated in arthritis throughout her body, due to past injuries and years of playing sports. On top of that, she occasionally walked in her sleep!). At first, this help came from friends who were willing to step in when we were both down for the count, mostly to do needed errands. But I knew as we aged, we would need more assistance.

Evening is my favorite time of day, because it means that Cari will come out of her den and we’ll watch TV together for a couple of hours before the caregiver shows up for the night. One of our cats (Reggie) curls up between us as we watch our favorite programs. It’s family time for us.

I love this ritual. We may not talk much, but that doesn’t matter; her presence is really all I need. She gives me something that no one else can, because she understands what it is like to live with chronic conditions and because some of those conditions overlap.

Over the past 25 years, we have seen each other through seizures, pain, emotional ups and downs, struggles with doctors, changes in medications and even menopause. We have figured it out. We get each other. And that gives me incredible comfort, and that is what has kept us together.

There are times, though, when one of us becomes insecure and wonders: Am I too much for her?

Here’s my response when it’s she that feels this way:

 

My Rock

 

You are my rock

not my hard place.

I lean back on your

solid stone so I can

feel the sun on my

face and the breeze

on my skin.

You are an artist.

You take the pieces of me

that are broken

– shattered shards –

and make them into

stained glass

the light singing through

all of the colors

not leaving even one of them out.

Cari and Maluma Peaceful (2)

 

Book Excerpt “I Am…”

The following is an excerpt from I Am, I Am, I Am – Seventeen Brushes with Death – a Memoir by Maggie O’Farrell. She had many brushes with death and this excerpt is about her recovery from encephalitis. Her description of recuperation is brilliant.

“Writing about this is hard, not in the sense that it is a difficult time for me to revisit. It’s not that it’s unwieldy or painful material to think about or mould into sentences and paragraphs. It’s more that the time I spent in hospital is the hinge on which my childhood swung. Until that morning I woke up with a headache, I was one person, and after it, I was quite another. No more bolting along pavements for me, no more running away from home, no more running at all. I could never go back to the self I was before and I have no sense of who I might have been if I hadn’t contracted encephalitis as a young child.

The experiences you live through while gravely ill take on a near-mystical quality. Fever, pain, medicine, immobility: all these things give you both clarity and also distance, depending on which is riding in the ascendant.

I recall my encephalitis, in its most acute phase, in flashes, in staccato bursts, in isolated scenes. Some things are as raw and immediate as the moment they happened; these, I can inhabit as myself, in the first person, in the present tense, if you like. Others I have almost to force myself to confront and I watch them as I might a film: there is a child in a hospital bed, in a wheelchair, on an operating table; there is a child who cannot move. How can that child ever have been me?

Of its aftermath, the rehabilitation, I have a stronger sense. The coming home from hospital, the weeks and months of being at home, in bed, drifting up and down on currents of sleep, listening in on the conversations, meals, emotions, arrivals and departures of family life below. The visitors who came, bearing books and soft-toy animals and, once, a man from over the road bringing a basket of baby guinea pigs, which he let loose in my bed, their tiny, clawed, panicked pink feet skittering up and down my wasted legs.

Convalescence is a strange, removed state. Hours, days, whole weeks can slide by without your participation. You, as the convalescent, are swaddled in quiet and immobility. You are the only still thing in the house, caught in stasis, a fly in amber. You lie there on your bed like it draped stone effigy on a tomb. As the only sound you hear is that of your own body, its minutiae assumes great import, becomes magnified: the throb of your pulse, the rasp of hair shaft against the cotton weave of your pillow, the shifting of your limbs beneath the weight of blankets, the watery occlusion when eyelid meets eyelid, the sylvan susurration of air leaving and entering your mouth. The mattress presses up from underneath, bearing you aloft. The drink of water waits beside your bed, tiny silvered bubbles pressing their faces to the glass. Distances that used to appear minor – from your bed to the door, the stretch of landing to the loo, the dressing-table to the window – now take on great, immeasurable length. Outside the walls, the day turns from morning to lunchtime to afternoon to evening, then back again (O’Farrell, 2005, p. 226-228).

 

 

Another Conversation with Dieuwke

Dieuwke, one of my nighttime caregivers, settles herself in the rocker next to my bed, as I sit up and pull the covers up around me. She tells me about her lunch date with her friend. I always like hearing her stories and look forward to them.

“She had this insight about herself”, Dieuwke says smiling. “She realizes she’s pretty tuned into the broader aspects of reality”, she spreads her arms out wide. “She meditates regularly for long periods of time, she can have all these revelations, and can be quite psychic. But the practical things in life, she’s not so good at”. She pauses and rearranges the blanket around her knees.

“You know, it’s funny – I was just thinking about the same sort of thing just today”, I start.

“How so”?

It seems to me that there are 2 realities going on at the same time. There’s this boundless dimension of reality you could say, and then there’s this concentrated, detailed reality. It’s hard for me to put into words”.

Dieuwke nods and looks at me intently as I sit up straighter.

I continue, “I can relate to your friend. I meditate, contemplate, I ponder about the Big Questions in life, but I have a harder time focusing on getting things done, even when I’m feeling ok”. I laugh “I can get these great ideas about what I want to write about in my blog and jot them down. But then the work of it is harder for me – the writing and re-writing, the editing. I’m not as fond of that as I am about the initial idea. I have to get my head out of the clouds and my feet on the ground”. I look at Dieuwke, who has a slight smirk on her face. She knows this about me already. She looks like she’s about to speak, but I put up my hand to stop her. “Wait a minute. There’s more”. Dieuwke raises her eyebrows.

I go on. “How does this understanding of the vastness of being help when we’re in the middle of great difficulty? When we feel like we can’t go on? When the pain, whether it’s emotional or physical, is just too much? For that matter, how does that kind of awareness help when we’re organizing our closet, cleaning out the fridge, or other kinds of chores”? I pause again. “I’ve been thinking awareness is kind of like a Maglite”.

“A Maglite”?, says Dieuwke skeptically. “Yes, a Maglite. If you twist it one way, the light becomes broad, like the vastness of the universe, but you can’t see the particulars around you. If you twist it the other way, you can’t see the bigger picture. To get things done in the physical world, you have to minimize the beam”.

Dieuwke tilts her head, considering this.

I continue. “Let me give you another example: I continue, “when I drive my car, I have to focus on driving, not the wonders of the Infinite, or else… I don’t know, I’d run off the road. Or, if I have to have a difficult conversation with someone, I can’t just focus on The Realm of Unlimited Possibilities – I have to say something”.

Dieuwke nods slowly (taking this in), but I see I need to say more for her to grok what I’m talking about.

“I remember one time when I had to go to my neurologist. I knew it was not going to be an easy visit, and that I needed to talk to him about a medication I was taking, so before I went into the office, I got very centered. When he came in, he already looked cross and in a hurry. I brought up how I wanted to handle my medication situation and he started to raise his voice, and even got a little angry. But, I immediately narrowed my focus – twisting the Maglite to one end, you could say – and stood my ground. I was not going to be intimidated! I was very, very tired that day and my stress level had been high or weeks, so I really had to use my energy wisely and not get distracted by his attitude, or veer off course. I didn’t back down, but I also didn’t retaliate. And although in the end we didn’t agree, and I had to go to another doctor who could better serve me, I felt good about how I handled myself. If the Maglite had been twisted the other way, I would’ve probably gotten scattered and spacey and maybe given in to how he wanted things to go down”.

Dieuwke responds, “Well… it’s like you said. The Maglite has the same power, whether you twist it this way or the other. It comes from the same source. My feeling is we have to be skillful about how we use that power. Every situation requires something different. It’s not really that there are 2 realities. There’s only one”. She nods, as if agreeing with herself. “Some people have an easier time in the physical world. Other people seem to have it easier in the unseen world. But, they’re both the same world, really – they just seem different. We all need a certain balance. Some people think that the physical world is pretty much all there is. Others pretty much dismiss the physical world, thinking it’s insignificant”.

I feel satisfied with this conversation and am starting to feel sleepy. I scooch down and get my entire body under the covers and position my pillow under my head.

“We’ve figured it all now, I’m sure of it. We finally got enlightened”, I say, and smile.

It’s about time”, Dieuwke says. We both chuckle and I close my eyes.

 

 

What do you think?                  

sunlight beaming on green trees
Photo by WARREN BLAKE on Pexels.com

            

 

Movie Review

Movie: Away from Her – synopsis by Google Search

“Long married, Fiona (Julie Christie) and Grant (Gordon Pinsent) find their mutual devotion tested by her struggle with Alzheimer’s disease. When it becomes apparent that the condition is worsening, she checks into a rest home. Grant visits her a month later and finds that his wife has grown close to Aubrey (Michael Murphy), a fellow resident. Jealous and hurt, Grant finally seeks help from Aubrey’s wife (Olympia Dukakis) when Fiona suffers a crisis.

Release date: May 4, 2007 (USA), Director: Sarah Polley, Screenplay: Sarah Polley”, and David Wharnsby, editor

My observance: Julie Christie is extraordinary in this role. You can almost see the deterioration of the disease by the expressions on her face as her memories slip and slide away from her. Great acting

The Interrelated Structure of Reality

“In a real sense, all of life is interrelated. All persons are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly. I can never be what I ought to be until you are what you ought to be, and you can never be what you ought to be until I am what I ought to be. This is the inter-related structure of reality.” ~ Martin Luther King, Jr.

 

 

 

Vermont Memory in the 70’s

One day while living in upstate New York, I decide to go with a group of friends to Vermont to stay at one of their parents’ home, who are away for the weekend. I am excited about this, because it is a house in the country and it’s mid-October and I know the colors in the surrounding hills will be bursting with colors. However, as usual, I haven’t been sleeping well and so when my friends decide to go for a hike, I feel too weary to join them, and instead, opt to lie down and rest in one of the big, cozy beds.

I must have dozed off, because the next thing I know is complete disorientation and a sensation of being caught in between worlds – the living and the dead, you could say. I feel incapacitated by fear and that is all I know. I don’t even know my name. I look around me and I can’t recognize anything – not the floral bedspreads, the bedside lamps, the room itself. The fear is so intense, yet so familiar, and then I begin to identify its movement and texture and how it relates to seizures. Am I going to have a seizure? The idea of this further frightens me and I grab onto the bed covers, as if holding on to something solid will help me stay here instead of leaving my body. I struggle again, to make sense of my surroundings, but again, I recognize nothing.

I call out again and again, but there’s no answer. My panic rises as I realize I am all alone.

After a bit, I remember a phone number, but I have no idea whose it is; but in the midst of my intense confusion, it feels like a life saver. Luckily, there is a phone on the bedside table, and I find I am able to retain the numbers long enough and the ability to punch in the numbers, to complete the call.

Someone picks up. “Hello?” – a woman’s voice.

“H – hello?”, I say tentatively, “Do you know who I am?”

I have happened to call my parents in California and my mother immediately recognized my voice. It is a difficult conversation – for me, because I am trying to form thoughts to put into words, and for her, because she is 3,000 miles away and there is very little she can do to help me. Throughout our exchange, I realize that I had a seizure, not that I was going to have one – a phenomenon that repeats itself throughout my life. Although she cannot help me find out where I am, just knowing what happened and who I am is, for the moment, enough for me to calm down a little. Her voice is an anchor for me, and I hang on to it for dear life.

Soon afterwards, my friends arrive, and I sort out where I am and where I live and other basic information.

The rest of the weekend, though, is spent in recovery. I am depleted through and through. I don’t fit into the human realm, yet. I am just a wounded animal, licking my wounds – a scream lodged in my beaten body.

Partial Seizures

There are many different kinds

of seizures as there are words for

“snow” for the Eskimo.

Many are innocuous enough and

just drop by for the day –

although unannounced and

uninvited, of course.

But others stay for weeks and

are as benevolent as a dictator:

taking over and taking control,

demanding and commanding,

and disrupting the general order of things.

Some come with personalities as grating

as The Star-Spangled Banner sung off key –

please stop, please stop, please.

Or, one day I’ll wake up to a brain

like a Salvador Dali clock or

the Wicked Witch of the West wailing

“I’m melt-ing!”

Others manifest like three-day old snow

in New York City, pushed aside

by a snowplow,

another like a slurpy,

a green one perhaps –

gush, mush, slush.

Then there are those imperceptible blips,

like when your cell phone lets you know

your batteries are

running

out.

But-then-for-two-weeks-I-am-speedy-

brained-like-Roadrunner-colliding-with-the

Tasmanian-Devil

until I am

mentally spent

and then the

thoughts

go

slow-

ly

by.

What to do?

I can’t evict them.

They won’t go.

I’ve tried

They are like confused

and abused children –

neglected and unwanted.

They need to live somewhere.

So, I’ve taken it upon myself

to give them a home

in hopes that one day

they will grow up,

and move out,

and find a place of their own.