Sometimes things come together: I sleep well enough to enjoy my day, and, after checking my daily to-do list, see that there is nothing that really needs to get done. It suddenly occurs to me that I could visit my friends Jesse and Shay, who live a little more than an hour north from me, and have my caregiver Jenna drive me.
When she arrives, I tell her my idea and find out she’s up for it. Let’s get out of town!
The day is perfect for an outing. It’s nearly the end of August and there’s a bit of coolness in the air, the heaviness of summer lifting for a bit.
We leave town and immediately get on the highway. We pass steep hills full of leaning redwoods and pines and I feel my senses awaken. Traveling – even a short trip out of town, always opens up my world, reminding me there’s more to life than the inside of my mind and the confines of my home.
Jenna and I converse on the way there. She’s only been working for me for a short time and this gives me a chance to get to know her better. She tells me a little about her unhappy childhood – growing up as an only child in a small town outside of Madison, Wisconsin and how she tended to her lonely spirit by climbing trees and watching all kinds of critters. I learn that she has moved around a lot since an adult, until she arrived in Mendocino County ten years ago and realized she had finally found her home.
I tell Jenna I need a break from conversing, knowing that when we arrive at Jesse and Shay’s, there’ll be plenty of it. I don’t want my brain to go on over-load before we get there and spoil the visit.
I turn and look out the window. We are passing through the tiny town of Laytonville, which holds not a whole lot more than a gas station, a general store and a few small restaurants. Old hippies live here side-by-side with rednecks pretty much amiably, it seems to me.
The road flattens out as does the scenery – there are less trees here, revealing gentle hills that are golden brown from parched grasses.
Finally, we reach Bells Springs Road and I direct Jenna to turn right onto it. The car immediately climbs, pavement turning to dirt and gravel. The washboard road jostles our bodies as we drive up and up, rounding one curve after another, a cloud of dust following. Occasionally, there is a break between madrone and manzanita on the right, revealing spectacular views of ridges spreading out for miles, with no houses in sight.
Eventually, just as I am becoming impatient, the road straightens out and we arrive at their driveway, which is steep but short, guarded by a large gargoyle leering at us at the base. We park at the top at level ground and get out.
I am always struck by the quiet here. I pause and take a moment, breathing in the stillness, which is settling after such a long and bumpy ride.
We stretch our legs and look around before nearing the house. Two large goddess statues line the pathway, almost as tall as full-grown women. Flat rocks nearby them have been carefully stacked creating a natural tower.
The house is unusual – what I would call a Northern California home, probably built back in the 70’s. It is weathered and rambling with two stories and sits amongst trees. Two decks are connected by a narrow walkway, which leads to the front door. As we walk in that direction, we pass potted plants and a large stack of wood, forcing us to walk single-file.
I hear voices call out and see Jesse and Shay out on the front deck. When Jenna and I reach them, I introduce everybody, then hug my friends hard – it’s been too long since we’ve gotten together.
A big oak tree bends over the deck, one of its huge branches almost touching it. Beside us is a carefully and lovingly constructed ornamental terraced garden. There are small, meandering pathways and a tiny pond with a run-off that’s gently burbling. It’s truly a thing of beauty.
Gardening has always been one of Jesse’s passions and has kept her busy over the years, but now that she’s in a wheelchair, she can no longer tend to this incredible creation of hers and has taken to making what she calls “faerie gardens”, that line the deck. These miniature gardens that she has worked on meticulously are made up of tiny plants made to look like trees, with elfin bridges, houses, and even people, and not one of them is the same.
They reveal the patience Jesse has, which is one of her most admirable traits, along with her great intelligence.
We take our seats and immediately launch into deep conversation. I have known these women for a very long time, so there is no need for small talk and pleasantries. Although I haven’t seen them for months, in many ways it feels like yesterday.
Inevitably, the conversation turns to health. Last year, Jesse was diagnosed with cancer. Surgery became necessary and she has recently finished rounds of chemo. Her hair has just started coming back and when I rub my hand across her head, I’m surprised with how soft it is. She talks about frequent doctor visits, anticipating test results, and the hardship of having to go to Ukiah for appointments, almost 2 hours away. As she talks, I check out her appearance more closely and realize she’s lost a lot of weight, which concerns me. Nevertheless, she seems cheerful and talkative, and my concern, at least for her emotional well-being, begins to wane.
Locally: Cancer Resource Center of Mendocino County https://crcmendocino.org/
It’s Shay, really, that worries me more. She has suffered from depression since she was a teenager. Her voice is often flat, and she sleeps a lot and has little vital energy. Jesse’s cancer has certainly added to her mental state, and so our talk turns to her struggles.
For information and to learn the symptoms of depression: https://www.apa.org/topics/depression/
She has been on antidepressants for some time. At first, she had a hard time adjusting to one medication, but then they gave her some relief. But not long after, the effects abated then stopped working altogether. The doctors wanted to increase her dosage, which she did, and that helped briefly, but then again, stopped working. Discouraged, she cut back, but found it difficult on her body and even though she’d like to go off altogether, it became too hard to do, so she has given up and stayed on them, even though she no longer feels any relief.
She has also gone to therapy, read countless books on depression, quit sugar altogether and changed her diet. But all this has had no effect on her body/mind.
“The only thing that really helps”, she says, “That really gets me out of my head is being creative.” She closes her eyes for a moment. “I can get in this zone and it takes me away from everything and into this other world.”
Shay is an incredible artist, with many interests. Her main focuses have been jewelry, painting and drawing. Her studio is a work of art itself: Sketches are set up here and there. Cups and cases hold pens, colored pencils and brushes in various shapes and sizes. Tiny drawers hold all sorts of beads, necklaces, chains and clasps. Easels lean against walls. There are leather-bound journals with her creations in them, reams of paper for watercolors, as well as others’ artwork – from small sculptures to paintings to help inspire her.
After Shay speaks, Jesse adds, her voice becoming soft, “What’s hard for me is seeing how her depression affects her self-esteem. She’s so damn hard on herself!” Tears spring to her eyes.
I know this to be true. Shay constantly puts herself down, downplays her artistic abilities, compares herself to others in many areas of her life, and often, in her mind, coming up short. It’s painful for me to see this in her. I love my friend dearly and know her not only to be talented, but extremely kind, sensitive and thoughtful. I only wish she could turn those qualities towards herself.
Jenna chimes in, “Well, I’m not clinically depressed, but I have my days and my cycles with it. When the days turn into weeks, I start to microdose myself with magic mushrooms. It works for me. It interrupts the cycle.”
We’re all interested in what she has to say, and barrage her with questions. What kind of mushrooms? How much do you take? Do you get high? Can you take it with antidepressants and other medications?
Jenna answers carefully. “I can only speak from my own experience. I take a teeny weeny bit of psilocybin and I don’t get high. But, I feel…” She thinks a bit, “I feel better, is all I can say. Different. Something shifts inside, and my brain resets itself.” She shrugs, as if to say, “That’s the best I can do to explain myself”. “And I want to be clear here: I don’t know if it will work for you. I don’t know if you can take it with your meds. I don’t have all the answers.” She shakes her head with a sad expression on her face. “And unfortunately, I’ve run out of mushrooms myself and don’t know where to get any.”
We’re all quiet, taking in all this information.
“I do think,”, Jenna adds, “That if you ever try it – don’t do it alone. Have someone there with you. I’d be willing to do that with you, if you’d like.”
“But you don’t have any,”, Jesse says, making sure. “No. But I’m looking. I could let you know if I find anything.”
Shay sighs, sounding weary, but says “Well I like the idea of taking something natural…” She drifts off, “I’m not sure if I’m up for something new.”
I understand this reaction. I’ve tried so many other things over the years and got my hopes up: Maybe this will work. Often, I don’t get the results I want, or it makes me feel worse and/or gives me intolerable side effects. Even something as simple and benign like vitamin B-12 to help feed my nervous system, took me a long time to try out. I just did not want to be disappointed yet again.
There’s a lull in the conversation and suddenly, seemingly out of nowhere, their scraggly black, Noche (with a tiny spot of white on the tip of his tail), shows up demanding attention, putting smiles on our faces. More shadows have moved in on the porch, taking over most of the sun spots. As much as I don’t want to leave, it’s best that we get on the road before it becomes too dark.
We reluctantly say our goodbyes and as we pull out of their driveway, I look back and see Shay holding Noche and waving at us.
We’re quiet as we head home as I process the visit. Seeing these beloved friends always warms my heart, but breaks it, too, if that’s possible. I realize I want to “fix” Shay, as others seem to want to “fix” me, but I know it’s not possible and that hurts. Maybe, if Shay wants to try them, those mushrooms will help, I think, as we whiz by trees and hills. And maybe they won’t.
Microdosing – disclaimer: I am not endorsing the use of illegal or potentially dangerous drugs/medications. The subject of microdosing is only to inform my readers.
Psychedelic Times: “How to Find Psychedelic Treatment for your Psychological Disorder” Posted by Wesley Thoricatha April 28, 2017 Articles, Psychedelic Integration, Psychedelic Therapy 3 https://psychedelictimes.com/find-psychedelic-treatment-psychological-disorder/
“It’s also important to know that not all psychological disorders lend themselves well to psychedelic treatment. While there is no scientific basis for the propaganda that psychedelics can “make you crazy,” it has been suggested that those with latent schizophrenia could have their condition triggered early by a strong psychedelic experience. Keep in mind this is still a new frontier of research, and people with certain medical conditions or on certain medications should absolutely not take certain psychedelics. Any properly run treatment clinic will have a full physical and mental health screening before treatment, and walk you through any contraindications that may be revealed. We do not endorse any illegal behavior, but from a harm reduction perspective, anyone who chooses underground treatment should exercise extreme levels of research, discernment, and safety precautions throughout the process.”
“Finding Integration Support – Beyond the psychedelic journey itself, integration of the experience after the fact plays a critical role in ensuring that the insights, progress, inspiration gained are translated into daily life in a sustainable way. Whether you are fresh out of an underground ayahuasca ceremony that helped you deal with childhood trauma, or a recent outpatient of an iboga center that helped you detox from an opiate addiction; a few weeks or months of integration support from someone who understands psychedelic treatment is immensely beneficial in securing your new goals, perspectives and commitments.” …
“Releasing the Stigma – One of the most insidious aspects of mental illnesses is the stigma that surrounds them. Despite the statistics that show how common these disorders are, our culture still often adopts a “toughen up and go it alone” approach, leading many to isolate themselves and be fearful of speaking up about their condition, much less seek help. Psychotherapy, prescription medications, and conventional rehab centers do help many people stabilize their lives, but sometimes these routes are not enough to fully eradicate the pain, trauma, and stress that lay at the core of the disorder, leading people to simply numb their symptoms without seeking true healing.” “Radical shifts in behavior, self-image, and wellbeing are something that psychedelics excel at when used appropriately, but not everyone is able to travel abroad for psychedelic treatment or willing to find underground options. The single most important thing that anyone suffering from an addiction or mental disorder can do is to speak up about it to their loved ones and seek help. Shame and stigma surrounding these issues should be forever discarded, as these conditions are an integral part of the human condition, and everyone faces stress, challenges, and addictive habits in their own way.”
Glamour Magazine website: “Microdosing, Depression, and the Trippy Future of Mental Health Treatments, Psychedelics are a fringe frontier of mental health treatments. But are they safe?” By Deanna deBara, September 5, 2019 https://www.glamour.com/story/microdosing-for-depression-does-it-work
… “Carina*, a 59-year-old therapist in Oregon, sees the ripple effects of the anxiety and stress of our current cultural climate every day in her work—and in her personal life. She has struggled with depression for much of her career, managing it with regular therapy sessions and movement practices like yoga and dance, but when she found herself struggling with a particularly challenging depressive episode in the wake of the #MeToo movement, she began exploring alternative treatment modalities.”
“That’s when she was introduced to microdosing for depression. “So much of depression is feeling stuck,” says Carina. “Microdosing has helped me get out of preservation mode; it helped me get out of the stuck places and see that there are options.”
“Shrooms (aka psychedelic mushrooms) and LSD have a rich résumé of providing a hallucinatory high, and we’re in the midst of a psychedelic resurgence. The recent interest in psychedelics isn’t a throwback to the ’60s so much as it is the potential future of mental health treatment—especially for depression and anxiety.”
“The goal of microdosing is not to get you high. As the name implies, the practice involves taking a small amount—a microdose—of psilocybin (in the form of mushrooms) or LSD every few days. Unlike higher doses of psychedelics, which typically produce the “trip” experience these substances are most known for, the effect of microdosing is much more subtle. Most people start with “around 10ug of LSD (around a tenth of a tab) or 0.1g of dried psilocybin mushrooms,” according to The Third Wave, a psychedelic education resource. (The “right” dose varies from person to person. You should never take any substance without consulting your doctor first.)”
“Psychedelics aren’t legal—they’re currently classified as Schedule I drugs by the U.S. Drug Enforcement Administration, meaning there’s “no currently accepted medical use and a high potential for abuse.” (For the record, cannabis is also classified as a Schedule I drug by the DEA.) That poses some considerable risks. Because psychedelics aren’t legal, they aren’t regulated. There’s no way of knowing what you’re getting, where it’s coming from, or how strong it is, which can put your safety in jeopardy.”
Medical News Today “Psychedelics: Risks and benefits of microdosing revealed: New research, published in the journal ACS Chemical Neuroscience, finds both potential benefits and risks of using psychedelic microdosing to treat mental health problems. The study reveals effects on cognitive skills and sociability, as well as metabolic and neuronal consequences.” By Ana Sandoiu on March 4, 2019 https://www.medicalnewstoday.com/articles/324609.php#1
“An emerging body of research is making a case for using psychedelic drugs to treat mental health issues.”
“For instance, two studies published last year showed that psilocybin, the active psychedelic compound in magic mushrooms, alleviated symptoms of treatment-resistant depression.”
“Moreover, the psilocybin did so without causing any side effects of conventional antidepressants. Such side effects typically include emotional blunting or apathy.”
“People who use psychedelics to improve their mental health and boost their overall well-being tend to do so with a technique called microdosing. Taking microdoses of a psychedelic drug means taking only a fraction of a dose that is required to have a full-blown psychedelic experience, or “trip.”…
“The lead researcher is David Olson, Ph.D., an assistant professor in the departments of Chemistry and Biochemistry and Molecular Medicine at the University of California, Davis.”
… “conflicting results may suggest that an acute dose of psychedelic substances affects the brain differently from intermittent microdoses.”
“Side effects notwithstanding, say the authors, the current results are promising because they suggest that researchers can separate the psychedelic effects from the therapeutic ones.”
“Our study demonstrates that psychedelics can produce beneficial behavioral effects without drastically altering perception, which is a critical step towards producing viable medicines inspired by these compounds,” says Olson.”
“This is the first time anyone has demonstrated in animals that psychedelic microdosing might actually have some beneficial effects, particularly for depression or anxiety. It’s exciting, but the potentially adverse changes in neuronal structure and metabolism that we observe emphasize the need for additional studies.” David Olson, Ph.D.”
Refinery29 – “Can Microdosing Psychedelic Mushrooms Curb Your Anxiety?” By Cory Stieg, August 7, 2019 https://www.refinery29.com/en-us/2019/08/238497/microdosing-psilocybin-mushrooms-benefits-depression-anxiety
“Microdosing, or taking tiny amounts of a drug daily, does more than just get people mildly high. Specifically, psychedelics such as LSD (which is very similar to psilocybin, pharmacologically speaking) act on the neurotransmitter system, serotonin, which is widely used in traditional antidepressant drugs, says Harriet De Wit, PhD, founder and primary investigator in the Human Behavioral Pharmacology Laboratory at the University of Chicago. “So, there is some neurochemical rationale for the possibility that it improves mood,” she says. Compared to traditional antidepressants, which can take weeks to take effect, microdoses of LSD have been shown to have marginal subjective effects after just one administration”, she adds.”
“All of this points to the greater need for research into promising drugs like psilocybin. Most experts agree that psychedelic drugs have a lot of potential — either taken in microdoses or in combination with psychotherapy with psychological guidance. “This is an exciting new chapter in psychiatric research,” Dr. De Wit says.”
Gargoyle Image from https://pixabay.com/photos/gargoyle-cathedral-strasbourg-1663459/
Click the link below for cancer centers in your area. National Cancer Institute: NCI- Designated Cancer Centers https://www.cancer.gov/research/nci-role/cancer-centers
I arrived at this hospital yesterday. When checking in, I told them I had been feeling suicidal. Someone put me in a wheelchair and brought me up to the 4th floor: the psychiatric ward. Someone else went through my belongings and found a pair of draw-string pants and pulled out the thin, cotton strip that would cinch around my waist. Did they really think I would kill myself with that?
Then, I was shown to my room with a single bed, the only window looking out at a drab grey building. I was told someone would check in on me every fifteen minutes. Instead of this unnerving me, I felt a great sense of relief. I felt safe for the first time in what seemed a long time.
The next day, I meet the other patients. There’s Andrea, who has obviously either been here for some time, or has come here before. She shows me “the ropes”: where to do laundry, where to shower, what time meals are. She rooms with Jasmine, who appears to be about Andrea’s age and it’s clear they have formed a friendship. One time, I hear a commotion, so I poke my head out of my room. Jasmine is in a wheelchair and Andrea is pushing her hard and fast down the corridor. They are both laughing and whooping it up and I find myself smiling a much-needed smile.
Then there’s Oscar with his droopy mustache and shuffling walk, who hangs out often with the waif-looking Toby; the two of them often having private conversations.
And then there’s Henry, who is wall-eyed and Asian, whose black, untended hair stands straight up. He can’t bear to look anyone in the eye and his whole body language is apologetic. He exudes both sweetness and confusion.
Victor is the only patient I am afraid of. He exhibits that kind of behavior that you see on the street that you want to avoid. He stands in a corner and argues with someone – someone the rest of us can’t see. Sometimes his voice becomes louder, turning to rage. Because I am so very anxious, and because there often seems to be no orderlies around, my fear escalates. I wring my hands; will he become violent? Will he unleash his violence on someone here? Me, even?
The other patients and I keep our distance from him. We all, excluding Victor, gravitate to one another, forming a kind of short-term family, while he remains a loner. I don’t know about the others, but I want it to remain that way.
But on my third day here, something changes that.
We are all gathered in the community room, including Victor. We take our places – Victor in the corner arguing, the rest of us sitting around the table, loosely interacting.
The TV is on, as usual. Today, someone has put in the DVD “Ghost”, which we look up at occasionally. Then the famous scene comes on with Demi Moore at the potter’s wheel, while Patrick Swayze comes up from behind, puts his arms around her, his hand joining hers. Then the familiar song, “Unchained Melody”, by The Righteous Brothers starts up, enhancing the scene.
Suddenly, Victor stops arguing. He turns from his corner and walks towards us and looks at the screen. He listens for a second, then opens his mouth and starts singing. His voice is full. His voice is tender. His voice is full of feeling. He knows every word, and every word is pitch-perfect. His gaze, usually hard and glazed over, becomes bright and clear, his blue black face is beatific and glows with an inner light. He is angelic.
The rest of us watch him, our jaws dropping. We are transfixed. We can’t believe what is happening. We know we are experiencing some sort of miracle.
And then the song stops – and when it does, Victor’s demeanor changes, and he turns away and goes back to his corner, resuming his argument.
For a full moment, no one says anything. We are stunned into silence. For a full moment we drop our roles (and our guard) and fall into that silence.
And then the moment passes. Patrick Swayze removes his arms from Demi Moore. Andrea and Jasmine look at each other and giggle. Oscar and Toby exchange glances. I bite my nails, my nerves returning. Henry hangs his head, as if embarrassed to be alive.
∗ ∗ ∗ ∗ ∗ ∗
Now, looking back at that incident, I realize many things. The first, most obvious realization is that music has the power to heal, if only for a few minutes. Everybody knows this, to a degree. If I’m feeling funky, I can, for example, listen to Al Green’s “Belle” and my whole mood shifts. When his beautiful, soulful voice enters the room and for some time afterwards, I feel uplifted, changed.
The second realization is that for as long as “Unchained Melody” lasted, Victor was no longer “other” – someone to be feared and avoided. For those few minutes, he became a part of our weird, dysfunctional family. He became a part of us, and we were a part of him.
For years afterwards, I thought about that incident and wondered about Victor: How did he get that way? Why was he so angry? Was it purely a “chemical imbalance”? What was his life like before he came to the hospital? Did he live on the streets? Does he now? Did he ever fall in love, have a family?
Of course, I don’t know the answers to these questions. I only know he is my brother of sorts. I know his metamorphosis made me believe in miracles. I know I want beauty to be always a part of his life.
And, wherever he is today, I hope he is singing.
Unchained Melody by The Righteous Brothers/Produced by Philles Records (1965)
Belle by Al Green (producer, 1977)
∗ ∗ ∗ ∗ ∗ ∗
If you think you are
not the drunk at the post
office reeking of alcohol
and loneliness, you got
another thing coming.
Pain is pain.
Nobody wakes up one day
and decides to be homeless
and carry around a bottle.
What happens in that space
between the precious baby
and the stumbling man?
If there’s one thing I know,
even though at times it
may seem otherwise,
is that there is no such
thing as “us” and “them”,
and until we realize that
there will be no peace.
So lend a hand, a smile,
some money, sign a petition,
say a prayer, tip higher
if you can.
Each act helps us yield
to the simple truth that
there is no separation
between me and you.
No one is going
to come along
and save us from our
own undoing but ourselves,
of each other, each of us
a part of the holy web.
While standing in line at Rite Aid, I look over at the magazines at the counter. On the cover of People Magazine is a picture of Mariah Carey, with a caption revealing she has bipolar disorder. When I reach the counter, I take a copy and set it down with my other items to buy: a notebook and my favorite pens.
The cashier ringing me up glances down at the cover.
“Mariah Carey’s bipolar?”, she scowls.
“Seems like everybody’s bipolar these days. I think it’s just an excuse. They want attention, or they’re just weak-minded. Sometimes you just got to buck up”.
I look at her tight mouth and flashing eyes and wonder about her life. Does she just “buck up” and push through? Is that how she handles the difficulties of her life?
I must have a shocked look on my face, or maybe my mouth is tightening, because when she looks at me again, she says, modifying her tone, “or maybe she is bipolar”.
“Maybe more people are coming out about it, are being braver”, I suggest.
And with that exchange, I leave.
The conversation bothers me. It’s attitudes like hers that keep brain disorders and mental illness in the closet. All chronically ill people have to push harder to go through life. Mentally ill people have the added difficulty of having a stigma attached, making it hard to feel okay about having an illness that affects the mind.
Why is it such a stigma? The brain is part of the body, not separate from it. So why do we get so judgmental or frightened about mental illness and not as much or at all about other illnesses? Unless someone is violent, it seems no point in being afraid or protecting ourselves. Are we all just frightened of losing control, ourselves? Aren’t we all trying to keep it together on some level, at least some of the time?
Strictly speaking, bipolar disorder is a mood disorder, not a mental illness. For that matter, so is an anxiety disorder. If I’m honest, I feel a sense of relief that I am not labeled “mentally ill”, because I don’t want to be lumped with “those people”. I’m not a psychiatrist, but it seems to me that there is some sort of spectrum. You have people like me on one end, and a paranoid schizophrenic on the other. Am I a better, more respectable, likeable, deserving person because I’m more functional in the world? No.
Personally, I’m happy Mariah Carey is on the cover of People, telling her story. Kanye West gives no apologies for his bipolar disorder. I’m happy Howie Mandell is honest about his plethora of anxieties, even making us laugh about them. When well-known people are outspoken about their mood disorders and mental illness, I think it encourages others to do the same. Maybe by doing so, the stigma of mental illness can slowly slough off because of their willingness and courage; to be vocal about it and be themselves.
We have a long way to go. There needs to be a lot more education about all kinds of brain disorders, until shame is ditched and replaced with compassionate understanding. Everyone can come out of the closet and not fear condemnation. We all deserve to be respected, accepted and treated well by our doctors, friends, and community. We are all part of a greater whole and deserve to be recognized as such. Otherwise, there will remain a fracture in our humanity and we will all suffer from it. And I don’t want that. Do you?
“We’re one but we’re not the same. We need to carry each other”. ~ Mary J. Blige